Meanings of quality of life among people living with epilepsy in Ghana; a qualitative exploratory study

Abstract

Purpose: The purpose of this study was to explore the meanings of quality of life among people living with epilepsy (PLWE) in Ghana. Methods: An exploratory-qualitative study design was adopted. Face-to-face in-depth interviews, using a semi-structured interview guide, were conducted on 15 PLWE who were purposively selected for the study. The interviews were audio recorded and transcribed verbatim. The content analysis approach was then used to analyze the data. Results: Four themes – ‘‘acceptance”, ‘‘support”, ‘‘seizure control”, and ‘‘self-reliance” emerged from the study as meanings of Quality of life (QoL). Quality of life meant unconditional acceptance from family, friends, acquaintances at home, school, and work, and by the public despite epilepsy. Receiving support in the form of protection from injury during a seizure, financial assistance to meet individual and family demands, emotional warmth, and spiritual support through prayers and encouragement, was QoL for PLWE. Achievement of control over seizures and being self-reliant in terms of selfcare and daily activities in addition to having some form of financial independence meant QoL. Conclusion: Meanings of quality of life among PLWE is associated with being accepted and supported by family and friends as well as being in control of seizures and attaining a status of independence.