Meanings of quality of life among people living with epilepsy in Ghana; a qualitative exploratory study
Date
2022
Journal Title
Journal ISSN
Volume Title
Publisher
Epilepsy & Behavior
Abstract
Purpose: The purpose of this study was to explore the meanings of quality of life among people living
with epilepsy (PLWE) in Ghana.
Methods: An exploratory-qualitative study design was adopted. Face-to-face in-depth interviews, using a
semi-structured interview guide, were conducted on 15 PLWE who were purposively selected for the
study. The interviews were audio recorded and transcribed verbatim. The content analysis approach
was then used to analyze the data.
Results: Four themes – ‘‘acceptance”, ‘‘support”, ‘‘seizure control”, and ‘‘self-reliance” emerged from the
study as meanings of Quality of life (QoL). Quality of life meant unconditional acceptance from family,
friends, acquaintances at home, school, and work, and by the public despite epilepsy. Receiving support
in the form of protection from injury during a seizure, financial assistance to meet individual and family
demands, emotional warmth, and spiritual support through prayers and encouragement, was QoL for
PLWE. Achievement of control over seizures and being self-reliant in terms of selfcare and daily activities
in addition to having some form of financial independence meant QoL.
Conclusion: Meanings of quality of life among PLWE is associated with being accepted and supported by
family and friends as well as being in control of seizures and attaining a status of independence.
Description
Research Article
Keywords
Meaning, Quality of life, People Living with Epilepsy, Ghana