The Experiences of Ageing Parents of Young Adults with Autism Spectrum Disorders (ASD)

Abstract

Global improvements in health care have resulted in improved longevity for the general population, including persons with autism spectrum disorders (ASD). Increasingly, many parents are living with and providing care for their young adults with ASD. Little, however, is known about the experiences of ageing parents of young adults with ASD, particularly in developing countries like Ghana. This study explored the unique experiences of nine ageing parents and their young adults with ASD using semi-structured interviews. Data were analysed using the thematic analysis approach. Findings from the analysis of their responses revealed five themes: psychological exhaustion, future uncertainties, planning for the future, isolation and stigmatization and social support. Findings of this study serve to extend the developmental perspective of caring for caregivers and adult persons with ASD, with implications for designing interventions for such population in developing regions. © 2019, Springer Science+Business Media, LLC, part of Springer Nature.