Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model

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dc.contributor.authorTindana, P.
dc.contributor.authorYakubu, A.
dc.contributor.authorStaunton, C.
dc.contributor.authorMatimba, A.
dc.contributor.authorLittler, K.
dc.contributor.authorMadden, E.
dc.contributor.authorMunung, N.S.
dc.contributor.authorVries, J.D.
dc.date.accessioned2019-11-26T15:32:09Z
dc.date.available2019-11-26T15:32:09Z
dc.date.issued2019-10-18
dc.descriptionResearch Articleen_US
dc.description.abstractIn the past decade, there has been an increase in genomic research and biobanking activities in Africa. Research initiatives such as the Human Heredity and Health in Africa (H3Africa) Consortium are contributing to the development of scientific capacity and infrastructure to support these studies on the continent. Despite this growth, genomic research and biobanking have raised important ethical challenges for key research stakeholders, including members of research ethics committees. One of these is the limited ethical and regulatory frameworks to guide the review and conduct of genomic studies, particularly in Africa. This paper is a reflection on a series of consultative activities with research ethics committees in Africa which informed the development of an ethics and governance framework for best practices in genomic research and biobanking in Africa. The paper highlights the engagement process and the lessoned learned.en_US
dc.description.sponsorshipThe consultation meetings were supported by the main funders of the H3Africa Consortium: the US National Institutes of Health (NIH) and the Wellcome Trust.en_US
dc.identifier.otherhttps://doi.org/10.1186/s12910-019-0398-2
dc.identifier.urihttp://ugspace.ug.edu.gh/handle/123456789/33848
dc.language.isoenen_US
dc.publisherBMC Medical Ethicsen_US
dc.relation.ispartofseries;2019
dc.subjectHuman Heredity and Health in Africa (H3Africa)en_US
dc.subjectConsortiumen_US
dc.subjectpan-African research initiativeen_US
dc.subjectAfricaen_US
dc.titleEngaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa modelen_US
dc.typeArticleen_US

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