Experiences Of Sickle Cell Disease (SCD) Among Adolescents Accessing Health Care At The 37 Military Hospital

Abstract

Sickle cell disease (SCD) is the most common inherited blood disorder throughout much of Sub-Saharan Africa affecting up to 3% of births in some parts of the continent. With the increasing occurrence of SCD in the adolescents visiting 37 Military Hospital, a basic understanding of their livelihood is of importance to medical practitioners for improved and better care delivery. This study seeks to explore the lived experiences of adolescents living with SCD as well as the challenges they face accessing healthcare at the 37 Military Hospital. It further analyses the coping strategies adopted by the SCD adolescents and existing support systems. Qualitative research methodology was employed in the study using interviews to collect data from SCD adolescents between the ages of 10 and 19 years. 25 respondents were interviewed, The study reveals adolescents experience symptoms of depression, dejection and feel stigmatized by friends. Access to health care is another challenge they experience due to inadequate specialized clinics, physicians, health insurance coverage and high cost of medical and laboratory expenses. Adolescents adopting different coping strategies including praying, physical activity, drinking of sufficient water, taking of pain killers and self-management. The study concludes that there is the need for the government to establish a free health care system for SCD patients across the country for easy access to healthcare and intensify education as well. Psychosocial support services and community-based support are also needed to improve the lived experiences of adolescent living with SCD.