Challenges and support needs of parents of children with developmental disabilities (DD) in Accra, Ghana
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Date
2022
Authors
Journal Title
Journal ISSN
Volume Title
Publisher
Research in Developmental Disabilities
Abstract
Background: Parents of children with developmental disabilities (DD) have diverse challenges and
needs. If met, these parents are able to provide adequate care for their children. Unfulfilled needs
like information about their child’s diagnosis, counselling, and poor access to informal and formal
supports increase parental stress and hinder their potential to provide optimal care for their
children and themselves.
Aims: This study explores the unique challenges and needs of parents caring for children with DD
in the Accra metropolis. This is the first study exploring the needs of parents in a Lower-middle
income (LMIC) country like Ghana.
Methods and procedures: A qualitative research design was adopted for this study. Data was
collected using semi-structured interviews from 9 parents of children with DD.
Results: Findings from thematic analysis revealed five themes including; Emotional needs;
Informational needs; Financial needs; Informal Support, and Formalized Support. Parents indi cated their great need for information on their children’s condition, support from family, religious
groups, and other formalized institutions and how to provide better care.
Conclusions and implications: Parents have several expectations and needs which must be
addressed. Findings have the potential of influencing the design and development of appropriate
interventions to meet the needs and improve the quality of life of parents of children with DD in
the Ghanaian context.
Description
Research Article
Keywords
Challenges, Needs, Parents, Children with developmental disabilities (DD), Ghana