“Between Strain and Perceptions,” The Voices of Family Caregivers Involved in the Care of Children with Cerebral Palsy: Evidence from a Ghanaian Low Socioeconomic Setting

Abstract

Background: In rural Ghana, families caring for children with cerebral palsy face physical, emotional, and financial challenges, yet little context-specific evidence exists. This study explored the lived experiences of caregivers at Upper East Regional Hospital. Methods: Using a qualitative, descriptive, exploratory design under the ABC-X model, 15 purposively sampled caregivers of children ≤ 18 years with CP were interviewed. Data were analyzed via Braun and Clarke’s reflexive thematic approach. Results: Two main themes, perceptions and role challenges, with 8 sub-themes emerged. Caregivers’ understanding ranged from accurate knowledge (eg, prematurity, birth complications) to misconceptions. Caregiving imposed physical, financial, and social burdens. Cultural beliefs and stigma influenced care, prompting navigation between traditional and biomedical treatments. Conclusion: Caregivers face multidimensional burdens compounded by limited knowledge and stigma. Interventions should include CP education, psychosocial support, stigma reduction, and strengthened biomedical and community based services to improve caregiver and child well-being.