“After Cutting It, Things Have Never Remained the Same”: A Qualitative Study of the Perspectives of Amputees and Their Caregivers.

Abstract

Introduction: Physical and emotional loss from amputation and associated physical disability are associated with adverse physical and psychological experiences. However, little research, within the Ghanaian context, has focused on the impact of amputation on the well‐being of amputees and their caregivers and the coping strategies they use to mitigate challenges experienced. Therefore, the present study explored the impact of amputation on the well‐being of amputees and caregivers, and the coping strategies they employ to manage distress associated with amputation and caregiving. Methods: The aim of this present study was explored using a qualitative descriptive design. Twenty (20) participants (comprising 10 amputees and 10 caregivers) responded to a semi‐structured interview guide. Results: Findings show that whereas amputees experienced phantom limb sensation and loss of job, caregivers reported economic hardship and fear. Though stress was a common experience, the source of stress was different for amputees and caregivers. Regarding coping, whereas amputees used social distancing, social reference and social support to cope with their traumatic ordeal, caregivers simply coped by encouraging themselves. Both amputees and caregivers used religious coping. Conclusion: Amputees and their caregivers experience varied stressors yet whereas the amputees get the needed support to deal with their predicament, caregivers lack adequate support. Patient or Public Contribution: The findings underscore the need for diverse support systems and psychoeducation on adaptive coping strategies for amputees and caregivers.