Experiences Of Persons Living With Epilepsy In Accra, Ghana

Abstract

Given that globally, neurological disorders like epilepsy have remained a public health issue, this study explored the experiences of persons living with epilepsy (PLWE) in Accra, Ghana. The study was guided by Bronfenbrenner’s (1979) ecological systems theory. The objectives of the study were to: (a) explore the perceptions of PLWE and key informants regarding the disease, (b) identify the challenges faced by PLWE, (c) find out the coping strategies adopted by PLWE and (d) ascertain the kinds of support available to PLWE. A qualitative research design was employed for the study. In-depth individual interviews using interview guides were conducted with twenty participants, comprising of fourteen PLWE and six key informants (two caregivers, two nurses and two officials). Participants were selected using purposive and snow ball sampling techniques. The data was analysed thematically and it was revealed that many PLWE and caregivers perceived epilepsy as a spiritual and curable disease. However, the nurses at Kaneshie Polyclinic and officials of BasicNeeds-Ghana perceived epilepsy as a medical condition. Also, it was found that PLWE faced challenges, such as stigma and discrimination, inability to complete school, unemployment, inadequate healthcare, difficulty finding marriage partners and financial constraints. Moreover, it was found that PLWE coped with the disease by adopting strategies like exclusion and concealment of the disease and involvement in religious activities. Also, evidence showed that there was support available for PLWE through caregivers, government and BasicNeeds-Ghana. Based on the findings of the study, it is recommended that public education on epilepsy be intensified. Furthermore, there is the need to ensure that PLWE have access to improved healthcare. It is also recommended that PLWE are enrolled on the NHIS and LEAP in order to improve their quality of life.